Desiree Collins-Bradley is a resident of Houston, Texas. Her passion is patient and family engagement in healthcare and ensuring that patient’s voices are always represented at all levels of shared decision-making.
She is a mother of three wonderful children. Her daughter was born with a genetic disorder Jarcho Levin Syndrome. It is extremely rare and often carries a very high mortality rate and grim prognosis. Her medical journey has inspired her to become an advocate not only for her daughter but in the medical community. She believes in the pillars of family-centered care, and it is her passion to spread the importance and awareness of them. She has become involved in several committees at the hospital, including the Newborn Center Family Advisory Committee, of which she was the Co-chair and one of the founding members. She is also a Family Advisor for the Vermont Oxford Network, which focuses on NICU improvement projects globally. She is also the Project Coordinator for Project DOCC Houston, a nonprofit organization focusing on the importance of partnerships between physicians and families of those taking care of a chronically ill or disabled family member. She currently manages a very interactive patient network PPIC, Patient Partner Innovation Community of over 3,000 members across the country. Her goal is to inspire other patients and caregivers to become activated in their healthcare communities. She is a strong advocate for patient populations at most social risk. She has worked on several SDOH, Social Determinants of Health initiatives with the National Quality Forum. Through their partnership, she has participated in panel discussions at congressional briefings in Washington, DC.